Functional Outcomes for Patients With Congenital Anorectal Malformations: A Systematic Review and Evidence-based Guideline From the APSA Outcomes and Evidence Based Practice Committee

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Consensus on functional outcomes for anorectal malformations (ARM) is hindered by the heterogeneity of the available literature. Optimal patient counseling includes discussion of short- and long-term outcomes for bowel and urinary continence, sexual and psychosocial function, transitional care, and quality of life. This systematic review examines and summarizes the current literature available related to functional outcomes for children with ARM.

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Article · Feb 2025 · 1 min read

In brief

This APSA systematic review synthesizes evidence on long-term functional outcomes for children with anorectal malformations, addressing bowel and urinary continence, sexual function, psychosocial health, and quality of life. The guideline aims to standardize outcome reporting and improve patient counseling across the heterogeneous ARM literature.

Functional outcomes in ARM vary widely; standardized assessment tools are needed for consistent patient counseling and outcome reporting.
Long-term follow-up must address bowel/urinary continence, sexual function, psychosocial health, and quality of life beyond childhood.
Heterogeneity in current literature limits evidence-based consensus; systematic outcome tracking improves transitional care planning.
Optimal counseling requires discussing both short-term surgical results and lifelong functional expectations with families.
Multidisciplinary care coordination is essential for addressing the spectrum of ARM-related functional challenges into adulthood.

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