Hirschsprung-associated Enterocolitis Action Plan: A Pictographic Tool for Caregivers of Children With Hirschsprung Disease

jpedsurg.org

Hirschsprung-associated enterocolitis (HAEC) is a life-threatening complication of Hirschsprung disease (HD), with significant morbidity and mortality rates. Early diagnosis and treatment are critical, and caregivers play a key role in detecting HAEC, performing colonic irrigations, and seeking timely medical care. This study validates an HAEC action plan designed to assist caregivers in managing HAEC at home.

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Article · Mar 2025 · 1 min read

In brief

This study validates a pictographic action plan that empowers caregivers of children with Hirschsprung disease to recognize and manage life-threatening enterocolitis (HAEC) at home. The tool guides early symptom detection, colonic irrigation techniques, and appropriate escalation to medical care.

HAEC is a life-threatening complication of Hirschsprung disease requiring early recognition and intervention.
Caregivers are essential in detecting HAEC symptoms and performing colonic irrigations at home.
A validated pictographic action plan empowers caregivers to manage HAEC and seek timely medical care.
Early diagnosis and treatment of HAEC significantly reduce morbidity and mortality in children with HD.

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