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Patient-Reported Experience in Colorectal Disease is Predicted by Cleanliness
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Read the article on jpedsurg.org ↗Article · May 2024 · 1 min read
In brief
In brief
This study examines how bowel management programs impact patient experience—including social participation, independence, and self-confidence—in children with anorectal malformations, Hirschsprung disease, and functional constipation. The research explores the relationship between achieving cleanliness and broader quality-of-life outcomes beyond traditional clinical metrics.
- Cleanliness achieved through bowel management programs directly predicts patient-reported experience in children with colorectal disease.
- Patient experience encompasses relationships, sports participation, independence, and self-confidence—domains beyond traditional clinical outcomes.
- Children with ARM, Hirschsprung disease, and functional constipation benefit from structured bowel management programs targeting cleanliness.
- Quality of life metrics alone may not capture the full impact of bowel management on daily functioning and psychosocial well-being.
- Optimizing cleanliness through BMP may improve broader patient experience outcomes in pediatric colorectal populations.
Written by the GCMD Library team from the article.
Children with colorectal diseases such as anorectal malformations (ARM), Hirschsprung disease (HD), and functional constipation (FC) undergo bowel management programs (BMPs) to achieve cleanliness. While patient outcomes, such as cleanliness and quality of life, are well understood, patient experience, such as relationships, ability to participate in sports, and independence and self-confidence is less well understood. We aimed to assess the relationship between BMP and patient experience.
Educational content from recorded physician discussions — not medical advice. Talk to your (or your child's) care team about your situation.
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