Quality of Life, Wellbeing and Participation in Adults Born With Congenital Diaphragmatic Hernia

jpedsurg.org

As more neonates born with congenital diaphragmatic hernia (CDH) survive, interest in long-term morbidities and their health-related quality of life (HRQoL) is growing. For adolescents and young adults with CDH, information on HRQoL is anecdotal. Therefore, our aim was to evaluate HRQoL and its determinants in a recently studied cohort of adult CDH survivors.

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Article · Mar 2025 · 1 min read

In brief

This study examines health-related quality of life and participation outcomes in adults who survived congenital diaphragmatic hernia as neonates. As CDH survival rates improve, understanding long-term morbidity and wellbeing in this growing population becomes essential for comprehensive care planning.

CDH survival rates are improving, shifting focus to long-term quality of life outcomes in adult survivors.
Limited data exists on HRQoL in adolescents and young adults with CDH beyond anecdotal reports.
Systematic evaluation of HRQoL determinants is needed to guide long-term care for adult CDH survivors.
Understanding participation and wellbeing in adult CDH patients informs transition care and support services.

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