The Transition of Patients with an ACE: Referral Pathway and Outcomes

In brief

This study examines the transition pathway for pediatric patients who received antegrade continence enema (ACE) procedures, focusing on referral processes and ongoing support needs as they move to adult care. The research addresses the challenges of maintaining continuity of care for young adults managing fecal incontinence with ACE.

• Transition from pediatric to adult care for ACE patients requires structured pathways to ensure continuity.
• Patients with ACE procedures need ongoing support beyond childhood to manage bowel management effectively.
• Understanding transition outcomes helps identify gaps in care and improve long-term patient quality of life.
• Structured referral pathways reduce loss to follow-up during the critical transition period.
• Assessing support requirements informs resource allocation for adult services managing ACE patients.

Written by the GCMD Library team from the article.