What Happens Post-Malone? An Investigation of Long-Term Postoperative Management of Antegrade Continence Enemas

In brief

This study examines long-term outcomes and patient experiences with antegrade continence enema (ACE) procedures used to treat medically refractory fecal incontinence and constipation. The research specifically investigates patterns of ACE usage over time and whether patients successfully discontinue appendicostomy or cecostomy tubes, providing insights into the durability and patient satisfaction with this bowel management intervention.

• ACE (antegrade continence enema) is a surgical option for medically refractory fecal incontinence and constipation in pediatric patients.
• Long-term ACE management requires ongoing assessment of tube usage patterns and patient/family satisfaction with the intervention.
• Some patients may successfully discontinue appendicostomy/cecostomy tube use over time, warranting investigation of predictive factors.
• Patient and caregiver perceptions of ACE effectiveness are critical outcomes beyond traditional clinical metrics.
• Understanding long-term ACE outcomes helps guide patient selection and set realistic expectations for families considering the procedure.

Written by the GCMD Library team from the article.