Andre Riedmann
11 statements · 1 topic · summaries given as host listed separately
Featured statements
Quality-of-life questionnaires should display items with normative values to help clinicians identify when patient differs from general population or other EA patients, facilitating targeted clinical conversations.
clinical ·
Esophageal Atresia
More specific gastrointestinal and respiratory questionnaires identified some quality-of-life issues in adults with EA but did not cover the full clinical picture.
clinical ·
Esophageal Atresia
Nothing matches these filters — clear the search or widen the filters.
Andre's statements about Esophageal Atresia 11 statements
Open the Esophageal Atresia collection →
Quality of life in relation to eating in children and adults born with esophageal atresia - ERNICA Research Collaboration
Statement
Generic health-related quality-of-life instruments (SF-36) failed to identify quality-of-life issues in adults with EA.
Open
Statement
More specific gastrointestinal and respiratory questionnaires identified some quality-of-life issues in adults with EA but did not cover the full clinical picture.
Open
Statement
Focus group event for adult EA patients and families attracted over 200 attendees to hospital.
Open
Statement
Initial qualitative study with adult EA focus groups identified 144 quality-of-life items.
Open
Statement
Pilot study with 42 adults refined SCIA instrument to 36 items by identifying items with appropriate distribution (not extreme responses, not too rare).
Open
Statement
Validation study with 447 adults from 4 Dutch hospitals resulted in final SCIA instrument with 33 items.
Open
Statement
SCIA instrument demonstrates good feasibility, reliability, and validity for measuring health-related quality of life in adults with EA.
Open
Statement
SCIA covers ICF framework domains: body functions, activity, participation, and environmental and personal factors, resulting in 11 domains for EA.
Open
Statement
SCIA translation and cultural validation is planned across 8 European countries to assess whether items are culturally biased.
Open
Statement
Quality-of-life questionnaires should display items with normative values to help clinicians identify when patient differs from general population or other EA patients, facilitating targeted clinical conversations.
Open
Summaries Andre gave as host · 3 summaries
Recaps of other experts' statements, not Andre's own clinical position.
Summaries Andre gave as host · Esophageal Atresia 3 summaries
Open the Esophageal Atresia collection →
Quality of life in relation to eating in children and adults born with esophageal atresia - ERNICA Research Collaboration
Host summary
Andre Riedmann summarizing the discussion: Going to a restaurant is really different, different for me than for others. I have to be careful with my, my choices.
Open
Host summary
Andre Riedmann summarizing the discussion: With my first girlfriend, I pretended to have already eaten at home. I didn't want to offend her parents by not being able to eat their food.
Open
Host summary
Andre Riedmann summarizing the discussion: One time there wasn't enough time to eat. So after that I started vomiting, and since then they give me the time I need.
Open