EUPSA/ERNICA · LIFE - Lifelong Follow up for Esophageal atresia
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Video2 min·Published Nov 2023Older

LIFE - Lifelong Follow up for Esophageal atresia

Chapter 1 of 4 · Fundamentals

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Introduction to Esophageal Atresia and Follow-up Care

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What the experts said0 expert statements · 13 host summaries
Esophageal atresia is a rare birth defect where a part of the esophagus, the tube connecting the mouth to the stomach, is missing.
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All patients born with oesophageal atresia should be treated at a specialist center with a multidisciplinary team.
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Follow-up support should be both lifelong and structured to monitor and treat difficulties such as breathing, nutritional or digestive issues.
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For the first year after surgery, an outpatient review including a nutritional assessment should take place every 3rd month.
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After the first year, outpatient assessments are recommended to occur every year or 2nd year until transition to adult care.
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An endoscopy is a procedure which examines the esophagus using a long, thin, flexible tube with a light and a camera passed through the mouth into the esophagus and stomach.
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An endoscope can be used to remove a small sample of tissue (biopsy) from the esophagus to be examined with a microscope.
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A biopsy can help identify any changes to the esophagus or early signs of change and can help decide on treatment options.
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An endoscopy should be performed when a child with oesophageal atresia is one year old.
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Following the first endoscopy at age one, endoscopies should be performed routinely to monitor children and adolescents born with oesophageal atresia.
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In adulthood, an endoscopy should be routinely performed every 5 to 10 years, depending on the individual patient and their circumstances.
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A review of the breathing system, including lung function tests, should be carried out for children and adolescents by a pulmonologist.
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Quality of life assessments using a validated questionnaire should be offered to patients with esophageal atresia.
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